Join the CCHS Network Team
The CCHS Network is growing, and we’re looking for passionate individuals to join our team. If you’re committed to making a difference in the lives of those affected by CCHS, we invite you to explore our current job opportunities.
The CCHS Network is now seeking to hire its first Executive Director – an essential milestone in the organization’s continued growth and impact. This leader will work closely with the Board to strengthen the organization’s capacity, expand its reach, increase its fundraising and deepen its impact across the CCHS community.
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The Database Administrator of the CCHS Network will play a vital role in advancing our mission to support individuals and families affected by Congenital Central Hypoventilation Syndrome (CCHS). Your work will be behind the scenes – managing databases and tools, including Little Green Light donor database (tracking contributions, ensuring data integrity, supporting donor stewardship, gift processing, and campaign reporting) and patient registration database. This work plays a key role in helping us deliver vital resources, education, and advocacy for the rare disease community. You’ll join a passionate, dedicated team that values collaboration, precision, and heart. Together, we’re building a stronger, informed, compassionate network of support and helping to drive research that brings hope to families around the world.
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