Together, we can undo Ondine. CCHS is an orphan disease. For generations, funding to investigate causes and seed treatments has been extremely limited. Now that researchers have found ways forward, imagine the revolutionary leaps in science that that your tax-deductible gift will make possible.
The CCHS Foundation is a division of the CCHS Family Network, a 501(c)(3) organization.
Our mission focuses on raising funds to further CCHS research via annual grant awards, raising international awareness and facilitating educational programs, and supporting CCHS families in need. We champion scientific and informative advances that will empower individuals living with Congenital Central Hypoventilation Syndrome and their loved ones to live full and productive lives. Our vision is a future where CCHS is no longer a life-threatening diagnosis!
Please feel free to review the following documents for more information regarding the CCHS Foundation:
Our one-page marketing brief can be kept for quick reference or distributed among interested parties
Melinda Riccitelli, Co-chair
Rebecca Martine, Co-chair