NEW WEBSITE COMING SOON

We are excited to launch our new website this CCHS Day 2022. The new website will feature our new logo and be friendlier, better organized,

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CCHS Day 2022

More Information to come! Like a firefly lighting up the night sky, we invite our community of families and supporters to shine a bright light

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CCHS Day 2019

CCHS Day 2019 … It Only Takes A Second 5th Annual International CCHS Day: November 9, 2019 IT ONLY TAKES A SECOND! Teddy Joe wants

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2018 Conference: Video Gallery

PHOX2B and the Genes it Controls Panel Discussion Oral Poster Presentation Before, During and After Phrenic Nerve Pacer Placement in CCHS Transition to Non-Invasive Ventilation,

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