CCHS Day 2022:
Casting a Light in the Dark

Over the past eight years, International CCHS Day has been a beacon of light, generating a surge of awareness and advocacy for our orphan disease. Like a firefly lighting up the night sky, we invite our community of families and supporters to help CCHS shine fiercely this CCHS Day, November 12th, 2022.

Like a firefly lighting up the night sky, we invite our community of families and supporters to shine a bright light on our orphan disease this CCHS Day.

Please click the button to purchase your pin.