Meet Dr. Linda Dokas
From Lab to Life: A Chat With Dr. Linda Dokas on Family, Research, and Hope (Interviewed by Melinda Riccitelli) Melinda: Linda, can you start by
From Lab to Life: A Chat With Dr. Linda Dokas on Family, Research, and Hope (Interviewed by Melinda Riccitelli) Melinda: Linda, can you start by
From Diagnosis to Dreams: A Conversation with Marne(Interviewed by Melinda Riccitelli) Melinda: Marne, can you start by telling us a bit about what inspired you to

We are excited to launch our new website this CCHS Day 2022. The new website will feature our new logo and be friendlier, better organized,

More Information to come! Like a firefly lighting up the night sky, we invite our community of families and supporters to shine a bright light

2021 Grant Awards The CCHS Foundation and CCHS Network are funding three projects approved for study by the CCHS Research Advisory Board. We share brief

7th Annual International CCHS Day: November 13, 2021 Over the past seven years, International CCHS Day has generated a surge of awareness and advocacy for

6th Annual International CCHS Day: November 14, 2020 The CCHS Foundation is calling all HEROES to join our fight for a CURE! Mark your calendar

CCHS Day 2019 … It Only Takes A Second 5th Annual International CCHS Day: November 9, 2019 IT ONLY TAKES A SECOND! Teddy Joe wants

2021 Grant Awards The CCHS Foundation and CCHS Network are funding three projects approved for study by the CCHS Research Advisory Board. We share brief