This year marks a truly special milestone as we proudly celebrate the 10th International CCHS Day! It’s a day dedicated to honoring our incredible CCHS heroes, whose lives are a testament to bravery, endurance, and unwavering resilience. On September 28 we will come together as a global community, united by love and admiration, to celebrate the strength and courage of those who inspire us every day. Let’s fill this day with gratitude, hope, and boundless pride as we cheer on our CCHS warriors, who continue to shine brightly, showing the world what it means to live life with unstoppable spirit!

While this day is dedicated to honoring our loved ones with CCHS, it also serves as our most significant fundraising event of the year. Over the past decade, we’ve raised nearly $3 million, funding 16 research projects, establishing the NOW Registry, and hosting two family conferences along with two international CCHS research conferences. These efforts have paved the way for upcoming research projects that hold the promise of new insights and advancements in the fight against CCHS.

Go to www.cchsnetwork.org/donate to make a donation.