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About
What is CCHS?
CCHS Diagnosis
The Genetics of CCHS
CCHS Symptoms and Medical Management
Respiratory Management
Understanding Breathing
Routine Monitoring
CCHS Transitions
Resources
Genetic Testing Centers
Physician List
Important Links
Transition to Adulthood
Casting a Light Stories
Education Videos
Research
CCHS Network Call for Research 2023
One World Registry
Funded Research Projects
Clinical Trials
CCHS Grant Awards
Fundraising
CCHS Foundation
Donate
CCHS Day 2022
Contact
Menu
About
What is CCHS?
CCHS Diagnosis
The Genetics of CCHS
CCHS Symptoms and Medical Management
Respiratory Management
Understanding Breathing
Routine Monitoring
CCHS Transitions
Resources
Genetic Testing Centers
Physician List
Important Links
Transition to Adulthood
Casting a Light Stories
Education Videos
Research
CCHS Network Call for Research 2023
One World Registry
Funded Research Projects
Clinical Trials
CCHS Grant Awards
Fundraising
CCHS Foundation
Donate
CCHS Day 2022
Contact
Donate
Buy Your Firefly Pin
Like a firefly lighting up the night sky, we invite our community of families and supporters to shine a bright light on our orphan disease this CCHS Day.
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