CCHS Specialists

Feel free to browse this representative list of physicians working with CCHS patients around the world.

This is not an exhaustive list of physicians with CCHS expertise.

U.S. Specialists

Alabama

BIRMINGHAM

David J. Lozano, MD
Associate Professor, Pediatrics
University of Alabama School of Medicine
Children’s Hospital of Alabama
Division of Pulmonary Medicine
1600 7th Avenue South, ACC 620
Birmingham, Alabama 35233
Phone: 205-638-9583

BIRMINGHAM

Teresa Magruder, MD, MPH
University of Alabama School of Medicine
Children’s of Alabama
Division of Pulmonary Medicine
1600 7th Avenue South
Birmingham, AL 35233
Phone: 205-638-9583
Fax: 205-975-5983

California

LOS ANGELES

Thomas G. Keens, MD
Professor of Pediatrics, Physiology and Biophysics
Keck School of Medicine of the University of Southern California
Division of Pediatric Pulmonology
Children’s Hospital Los Angeles
4650 Sunset Blvd, Box #83
Los Angeles, CA 90027-6062
Phone: 323-669-2101
Fax: 323-664-9758

LOS ANGELES

Iris A. Perez, MD
Assistant Professor of Pediatrics
Keck School of Medicine
University of Southern California
Division of Pediatric Pulmonology
Children’s Hospital Los Angeles
4650 Sunset Boulevard, Box #83
Los Angeles, CA 90027-6062
Phone: 323-361-2101

Florida

PENSACOLA

Christopher Makris, MD
Pediatric Pulmonology
5153 N 9th Ave
Pensacola, FL
Phone: 850-505-4711
Fax: 850-505-4711

Georgia

ATLANTA

Ajay Kasi, MD
Assistant Professor of Pediatrics
Emery University School of Medicine
Pediatric Pulmonologist
Children’s Healthcare of Atlanta
1400 Tullie Road NE, 5th Floor
Atlanta, GA 30329
Phone: 404-785-5437
Illinois

CHICAGO

David Gozal, MD
Chair and Professor of Pediatrics
Comer Children’s Hospital
University of Chicago
5841 S. Maryland Ave. MC 8000
Chicago, IL 60637
Phone: 773-702-4523

CHICAGO

Debra E. Weese-Mayer, MD
Center for Autonomic Medicine in Pediatrics (CAMP)
Lurie Children’s Hospital
225 East Chicago Avenue, Box 165
Chicago, IL 60611-2605
Phone: 773-880-8188
Fax: 773-880-8100
Massachusetts

BOSTON

Umakanth Khatwa, MD
Attending Physician; Director of Sleep Laboratories,
Director of Aero-digestive Center
Pulmonary Program, Director of Primary Ciliary Dyskinesia Program
Instructor in Pediatrics, Harvard Medical School
Boston Children’s Hospital
300 Longwood Avenue
Boston, MA 02115
Phone: 781-216-2570
Fax: 781-216-2518

BOSTON

Thomas Bernard Kinane, MD
Pediatric Pulmonary
Massachusetts General Hospital
275 Cambridge Street, POB 275
Boston MA, 02114
Phone: 617-726-8707
Fax: 617-724-2803
New York

VALHALLA

Allen J. Dozor, MD, FCCP, FAAP
Professor of Pediatrics and Chief Pediatric Pulmonology
Maria Fereri Children’s Hospital at Westchester Medical Center
New York Medical College
Valhalla, NY 10595
Phone: 914-493-7585
Fax: 914-594-4336
Pennsylvania

PHILADELPHIA

Olufunke Afolabi-Brown, MBBS
Pediatric Pulmonology
Children’s Hospital Of Philadelphia -Pulmonology
3401 Civic Center Blvd, Philadelphia, PA, 19104
Phone: (215) 590-3749
Fax: 215-590-3500

PHILADELPHIA

Dr. Jorge Mora, M.D.
Director, Adult Pulmonology
Penn Medicine
Penn Sleep Center
3624 Market St.
Philadelphia PA 19104
Phone: (215) 662-7772

PITTSBURGH

Dr. Patrick Strollo, M.D.
Director, Adult Pulmonology
UPMC
Department of Medicine
1218 Scaife Hall
3550 Terrace Street
Pittsburgh, PA 15261
Phone:412-802-8594
Utah

Salt Lake City

Melissa Maloney, MD
Assistant Professor, Division of Pediatric Pulmonary and Sleep Medicine
University of Utah
Primary Children’s Hospital
81 N. Mario Capecchi Dr
Salt Lake City, UT 84113
Phone: 801-213-3599
Virginia

CHARLOTTESVILLE

W. Gerald Teague, MD
Division Head, Pediatric Respiratory Medicine
Pediatric Pulmonology
University of Virginia (UVA)
PO Box 800386
Charlottesville, VA 22908- 0386
Phone: 434-924-0408
Washington

SEATTLE

Maida Lynn Chen, MD
Pulmonary and Sleep Medicine
Seattle Children’s
OC.7.720 – Pulmonary
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-2174
Wisconsin

MILWAUKEE

Thomas B. Rice, MD, FCCP, FAAP
Professor of Pediatrics
Chief, Pediatric Pulmonary/Critical Care Division
Medical College of Wisconsin
Children’s Hospital of Wisconsin
9000 West Wisconsin Avenue
Critical Care Office MS #681
Milwaukee, WI 53226
Phone: 414-266-3360
Fax: 414-266-3563

International Specialists

Australia

MELBOURNE

James Tibballs, MD
Associate Professor, Deputy Director
Intensive Care Unit, Royal Children’s Hospital
Flemington Road
Parkville, Melbourne, Australia 3052
Fax: 61-3-9345-5221
Brazil

SAO PAULO

Geraldo Lorenzi Filho, MD
Hospital das Clinicas-Sao Paulo
Universidade de Sao Paulo
Sao Paulo, Brazil
Phone: 55-11-2806179

SAO PAULO

Gustavo Antônio Moreira
Doutor em Ciências pela UNIFESP
Especialista em Pediatria e Medicina do Sono
Pesquisador do Instituto do Sono, São Paulo
Diretor Médico do Serviço de Ventilação Domiciliar
para Portadores de Doenças Neuromusculares
São Paulo, Brazil
Phone: 55-11-99614-4294
Denmark

AARHUS

John Oestergaard, MD
Center for Sjældne Sygdomme (Center for Rare Diseases)
Aarhus University Hospital
http://www.auh.dk/
Phone: +45-7845-1418
E-mail: johnoest@rm.dk
France

PARIS

Dr. Maxime Patout, MD
Associate Professor
Hôpital La Pitié Salpêtrière,
APHP, Sorbonne Université
47-83 boulevard de l’hôpital
75013 Paris, France
Maxime.patout@aphp.fr
Phone number: +33 1 42 16 77 08
Adult CCHS Care

PARIS

Dr. Plamen Bokov, MD

Associate Professor

APHP, Université Paris Cité

48 Boulevard Sérurier

75019 Paris

plamen.bokov@aphp.fr

Phone number: +33 1 85 55 27 56

PARIS

Dr. Benjamin Dudoignon, MD

APHP, Université Paris Cité

48 Boulevard Sérurier

75019 Paris

benjamin.dudoignon@aphp.fr

Phone number: +33 1 40 03 47 51

 

Germany

BOCHUM

Professor Marianne Schläfke, MD
Abteilung für Angewandte Physiologie
Ruhr-Universität Bochum
44780 Bochum
Germany
Phone: 0 234-322-4884
Fax: 0 234-321-4250

MUNICH

Professor Jochen Peters, MD
Klinikum Dritter Orden
Menzinger Str. 44
80638 Munich, Germany
Phone: +49-89-1795-2601 (Office)
Fax: +49-89-1795-2603

MUNICH

Dr. Panagiota Chaitidou-Kolb, MD

Klinikum Dritter Orden

Klinik für Kinder- und Jugendmedizin

Heimbeatmung/Schlaflabor

Menzinger Str. 44

80638 München

Tel.: 089 1795 1626 74

Fax.: 089 1795 2603

Israel

TEL AVIV

Yakov Sivan, MD
Professor of Pediatrics
Pediatric Pulmonologist, Pediatric Intensivist, Pediatric Sleep Specialist
Department of Pediatric Pulmonology, National CCHS Center, Safra Children’s Hospital, Sheba Medical Center
Tel Aviv University, Sackler Faculty of Medicine
Israel
Phone: +972-52-426-2020
E-mail: sivan@tauex.tau.ac.il
Italy

ERBA

Francesco Morandi, MD
Unita Operativa di Pediatria
Ospedale Sacra Famiglia
Via Fatebenefratelli 20
22036-Erba (CO)
Phone: 0-341-531220
Phone: 328-2736651
Japan

TOKYO

Hisaya Hasegawa, MD, PhD
Division of Neonatal Intensive Care
Tokyo Women’s Medical University Medical Center East
2-1-10 Nishiogu, Arakawa-ku, Tokyo 116-8567, Japan
Phone: +81-3-3810-1111
Website: www.twmu.ac.jp/DNH/mce/NICU/byouki.html

TOKYO

Yousuke Yamada, MD
Division of Neonatal Intensive Care
Tokyo Women’s Medical University Medical Center East
2-1-10 Nishiogu, Arakawa-ku, Tokyo 116-8567, Japan
Phone: +81-3-3810-1111
Website: www.twmu.ac.jp/DNH/mce/NICU/byouki.html
South Africa

CAPE TOWN

Fiona Kritzinger, MD
Paediatrics & Paediatric Pulmonology
Christiaan Barnard Memorial Hospital
Suite 201, 87 Loop Street
Cape Town, South Africa
Phone: +27-21-422-1354
E-mail: drkritzinger@thrivingkids.co.za
Spain

MADRID

Geneticist Angel Campos-Barros, PhD
Institute of Medical and Molecular Genetics (INGEMM)
& Biomedical Research Network for Rare Diseases (CIBERER U753), ISCIII
Castellana 261
28046 Madrid, Spain
Phone: +34 91 2071010 x 254
E-mail: angel.campos@salud.madrid.org

MADRID

Maria Angeles Garcia-Teresa, MD
Paediatrics & Paediatric Intensive Care
Nino Jesus University Children Hospital
Calle Menendez Pelayo, 65
28009 Madrid, Spain
Phone: +34 91 5035914
E-mail: mariangeles.garcia@salud.madrid.org
Sweden

STOCKHOLM

Professor Hugo Lagercrantz
Astrid Lindgren Children’s Hospital, Karolinska University Hospital
Solna, SE-171 76 Stockholm, Sweden
Phone: +46-8-517-700-00
Fax: +46-8-517-751-21
E-mail: hugo.lagercrantz@ki.se

STOCKHOLM

Associate Professor Miriam Katz-Salamon
Astrid Lindgren Children’s Hospital, Karolinska University Hospital
Solna, SE-171 76 Stockholm, Sweden
Phone: +46-8-517-724-31
Fax: +46-8-517-751-21
E-mail: miriam.katz-salomon@ki.se

UPPSALA

Anders Jonzon, MD
University Children’s Hospital, ing. 95 NBV
Department of Woman and Child Health, Pediatrics
018-611 5928 or 070-3147490
751 85 Uppsala, Sweden
E-mail: anders.jonzon@kbh.uu.se
Switzerland

BASEL

Juerg Hammer, MD
Head, Div. of Pediatric Intensive Care and Pulmonology
University Children’s Hospital Basel
Roemergasse 8
4005 Basel, Switzerland
Phone: +41-61-685-65-65
Fax: +41-61-685-50-59
United Kingdom

SOUTHWEST ENGLAND

Professor Peter Fleming, MD
Institute of Child Health Education Centre Royal Hospital for Children
Upper Maudlin St.
Bristol BS2 8BJ
Phone: +44-0-117-928-5221
Fax: +44-0-117-928-5389

STAFFORDSHIRE

Martin Samuels, MD
Consultant Paediatrician
Academic Department of Paediatrics
North Staffordshire Hospital
Stoke on Trent, ST4 6QG UK
Phone: +44-0-1782-552662
Fax: +44-0-1782-713946