In The News: CCHS NOW Registry

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Make a Difference: Join the CCHS Network One World Registry

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The CCHS Network in collaboration with NORD (The National Organization of Rare Disorders) are actively recruiting CCHS patients to join the CCHS NOW Registry. 

Join the registry here.

There is NO cost to you or your family, and NO medical tests to take. For more information, contact us at cchsnowregistry@cchsnetwork.org.
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