Private Facebook Group Information and Guidelines For Families
CCHS Network maintains a private CCHS Facebook page for patient/family discussions.
You must be a member of the CCHS Network to access the private Facebook page. Please go to CCHS Network US Registration if US family or CCHS Network International Registration if International family to register with the CCHS Network. A confirmed CCHS diagnosis is required for registration.
To create and communicate content that educates, inspires, informs and empowers CCHS patients/families, and to serve as a platform to share experiences, post questions and safely discuss issues in CCHS.
These are the guiding principles that govern the behavior and action of this group:
Honesty, Respectfulness, Open-mindedness, Optimism, Compassion, Cooperation, Knowledge, Togetherness, and Fairness.
CCHS Network Facebook Forum User Agreement
By registering with the CCHS Network and joining the CCHS Network private Facebook page you agree to these terms of usage.