Patients & Families

Review treatments and transitions informed from the 2010 ATS Statement.

Treatments


Research

We are committed to investigational studies, best clinical practices, and best patient-centered outcomes.

Projects


Donors

CCHS Foundation is the fundraising subsidiary of the CCHS Network.

About Us

CCHS Foundation has raised $30,570.71 toward our annual goal of $150,000. Your generosity makes a difference!

In 2017, through the generous donations made by the CCHS Community, the CCHS Foundation raised $183,106.99. This money will go to support CCHS research and causes. Thank You!

Make a Donation



featured-video

Featured Video

“CCHS” by Jeff Martini on Vimeo

CCHS is a rare genetic disorder of the central nervous system affecting ~1200 individuals worldwide. It impairs the body’s ability to breathe automatically, especially during sleep.

Those with CCHS are also at risk for cardiac pauses, cancer, GI dysfunction, seizures, and learning and behavioral issues.

Watch More



2018 Conference: Save The Date

Posted Sunday, July 16, 2017 by ryan_cchs

2018 Conference: Save The Date

2018 Conference: Meet the Speakers

Posted Saturday, February 17, 2018 by ryan_cchs

2018 Conference: Meet the Speakers

2018 Conference: Meet the Planners

Posted Tuesday, August 29, 2017 by ryan_cchs

2018 Conference: Meet the Planners

 

CCHS Day 2018

Posted Wednesday, October 4, 2017 by ryan_cchs

CCHS Day 2018

In The News: 2017 Grant Awards

Posted Wednesday, August 2, 2017 by ryan_cchs

In The News: 2017 Grant Awards

2016 Progress: Research Summary Report

Posted Thursday, June 8, 2017 by ryan_cchs

2016 Progress: Research Summary Report


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