Patients & Families

Review treatments and transitions informed from the 2010 ATS Statement.



We are committed to investigational studies, best clinical practices, and best patient-centered outcomes.



CCHS Foundation is the fundraising subsidiary of the CCHS Network.

About Us

CCHS Foundation has raised $2000 toward our annual goal of $150,000. Your generosity makes a difference!

Make a Donation


Featured Video

“CCHS” by Jeff Martini on Vimeo

CCHS is a rare genetic disorder of the central nervous system affecting ~1200 individuals worldwide. It impairs the body’s ability to breathe automatically, especially during sleep.

Those with CCHS are also at risk for cardiac pauses, cancer, GI dysfunction, seizures, and learning and behavioral issues.

Watch More

In The News: CCHS 2017 Read-a-Thon

Posted Friday, March 17, 2017 by ryan_cchs

In The News: CCHS 2017 Read-a-Thon

Social Media Featured Families: March 2017

Posted Friday, February 10, 2017 by ryan_cchs

Social Media Featured Families: March 2017

Project Progress: NGS

Posted Friday, October 28, 2016 by ryan_cchs

Project Progress: NGS

CCHS Network proudly partners with these organizations