Patients & Families

Review treatments and transitions informed from the 2010 ATS Statement.

Treatments


Research

We are committed to investigational studies, best clinical practices, and best patient-centered outcomes.

Projects


Donors

CCHS Foundation is the fundraising subsidiary of the CCHS Network.

About Us

CCHS Foundation has raised $71,500 toward our annual goal of $150,000. Your generosity makes a difference!

Make a Donation



featured-video

Featured Video

“CCHS” by Jeff Martini on Vimeo

CCHS is a rare genetic disorder of the central nervous system affecting ~1200 individuals worldwide. It impairs the body’s ability to breathe automatically, especially during sleep.

Those with CCHS are also at risk for cardiac pauses, cancer, GI dysfunction, seizures, and learning and behavioral issues.

Watch More



Save The Date: 2018 Conference

Posted Sunday, July 16, 2017 by ryan_cchs

Save The Date: 2018 Conference

In The News: 2017 Grant Awards

Posted Wednesday, August 2, 2017 by ryan_cchs

In The News: 2017 Grant Awards

2016 Progress: Research Summary Report

Posted Thursday, June 8, 2017 by ryan_cchs

2016 Progress: Research Summary Report

 

Social Media Featured Families: August 2017

Posted Wednesday, August 2, 2017 by ryan_cchs

Social Media Featured Families: August 2017

Family Talk: August 2017

Posted Wednesday, August 2, 2017 by ryan_cchs

Family Talk: August 2017

Quotes: August 2017

Posted Wednesday, August 2, 2017 by ryan_cchs

Quotes: August 2017


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