CCHS Day 2018



CCHS Ties Us Together is the 2018 annual fund campaign for the CCHS Foundation & CCHS Family Network. We invite our CCHS community and supporters from around the globe to join us in … #MovingTowardACure.

What moves one forward better than a great pair of sneakers? The CCHS Foundation needs your help in gaining momentum and moving our community closer co a cu.re. We encourage all CCHS families and friends to get in on the action by lacing up a pair of sneakers on November 10th with the shoestrings tied together. Take a picture as a sign or solidarity with the global CCHS community and post it to our CCHS Day Face book page. Or feel free to “take it a step further” by getting creative with this theme (be sure to capture and share any funny moments)! Then, make a donation to the CCHS
Foundation that equals the cost of your favorite sneaks. Think of every penny donated as one big step towards a cure!

There is still time to donate to this worthy cause. Please donate today to make a difference.

For further information regarding CCHS Day 2018, feel free to review our flyer.

Thank you!


CCHS Day 2017



Dance ’Til Dawn is the 2017 fundraising/awareness campaign of the CCHS Foundation & CCHS Family Network. We invited and encouraged our CCHS community and supporters from around the globe to Come Get Your Groove On in an effort to raise awareness and funds for this deserving cause. We saw living rooms, fields, schools, and other venues filled with dancers ready to change the fate of CCHS!

There is still time to donate to this worthy cause. Please donate today to make a difference.

For further information regarding CCHS Day 2017, feel free to review our flyer.

Thank you!


CCHS Day 2016


firefly

“Fireflies are tiny messengers that whisper in the darkness.” ~Anonymous

There are only 1200 cases in the world of Congenital Central Hypoventilation Syndrome (CCHS). Alone, our light is dim and our whispers are soft. But with your help, our light will shine bright and our voices will be heard.

Thank you to all who participated in CCHS Day 2016, and who helped “light up social media for CCHS.” Your donations and awareness raising are appreciated and will make a difference in the lives of those living with CCHS.

There is still time to donate to this worthy cause. Please donate today to make a difference.

For further information regarding CCHS Day 2016, feel free to review our press release.
Watch the light continue to spread across the globe at www.facebook.com/TheCCHSFoundation.

Thank you!


CCHS Day 2015



Sleepovers are a right of passage for many cultures. Sadly, children with CCHS often find themselves left behind due to the complexities of their equipment, need for monitoring, and constant fear.

But not this time! Jump into your pajamas and help us celebrate with a virtual pajama party on International CCHS Day – November 14, 2015.

There is still time to donate to this worthy cause. Please donate today to make a difference.

For further information regarding CCHS Day 2015, feel free to review our flyer.

Thank you!