A few patients with CCHS acquired the COVID-19 infection. The presentation, clinical course, and outcome of COVID-19 infection in individuals with CCHS is currently unknown. Dr. Ajay Kasi from the Division of Pediatric Pulmonology at Children’s Healthcare of Atlanta and Emory University is conducting a voluntary questionnaire research study. The purpose of this research study is to learn about the clinical features and outcomes of COVID-19 infection in children and adults with CCHS.
You/your child will be eligible to participate in this study if you/your child has CCHS and tested positive for COVID-19. The information from this study may help the medical community better serve CCHS patients with COVID-19 infection. Therefore, we are reaching out to the CCHS patient community with questions regarding your experience if you (the individual with CCHS) or your child with CCHS tested positive for COVID-19. If you choose to participate in this study, your participation will involve answering a questionnaire (about 5 minutes) to report your experiences with COVID-19. Participation in this study is voluntary.
Please click below to access the survey if you (the individual with CCHS) or your child with CCHS was diagnosed with COVID-19 infection. Thank you for your participation.