Posted Sunday February 12, 2017 by Ryan Riccitelli

In The News: CCHS NOW Registry

Make a Difference: Join the CCHS Network One World Registry

The CCHS Network in collaboration with NORD (The National Organization of Rare Disorders) are actively recruiting CCHS patients to join the CCHS NOW Registry. 

Join the registry here.

There is NO cost to you or your family, and NO medical tests to take. For more information, contact us at