The CCHS Foundation is seeking a highly motivated and resourceful individual with a passion for non-profit fundraising and rare diseases to join our evolving team. Our organization has operated through the hard work of family volunteers for the past 29 years. We are thrilled to take this monumental step in hiring our first professional staff member to drive our mission and improve the lives of the ~1,200 individuals living with congenital central hypoventilation syndrome (CCHS).
To learn more about CCHS as well as the CCHS Family Network and CCHS Foundation, visit www.cchsnetwork.org.
This part-time position will work remotely and report directly to our leadership in California and New Jersey.
To apply for this position you must:
After submitting your profile, please complete your application by emailing a cover letter and resume to firstname.lastname@example.org.
Consolidated applications will then be reviewed by the hiring committee.