We love our Corporate Partners! We are always happy to welcome new partner organizations that support our mission. Their support brings hope to the families living with CCHS.
Encinitas, CA, April 18 2017 – The CCHS Foundation and Avery Biomedical are proud to announce a multi-year partnership that will see Avery contribute significant financial support to the rare disease organization.
The partnership begins in earnest with a $25,000 donation from Avery split into monthly gifts of $2,500 from March to December. People living with congenital central hypoventilation syndrome (CCHS) require ventilatory support, such as the diaphragm pacemakers manufactured by Avery. The Avery Breathing Pacemaker is an FDA approved implanted phrenic nerve or diaphragm stimulator. There are about 1200 people living with CCHS worldwide. Currently 217 CCHS patients utilize the Avery Breathing system for ventilatory support.
“We are delighted to formalize our partnership with Avery Biomedical”, Melinda Riccitelli, Ph.D., Co-Chair of the CCHS Foundation said. “Avery has been a steadfast friend to the CCHS community for many years so it is fitting that they are now the premier corporate sponsor of the CCHS Foundation. The CCHS Foundation is committed to improving the lives of those living with CCHS; Avery’s pledge will help us realize our goals. Their contributions will be used to fund annual CCHS research grants, expand international outreach and education, and support individuals and families living with CCHS.
“We are pleased and honored to offer our continual support to the important work of the CCHS Foundation,” said Linda Towler, CEO of Avery Biomedical Devises. For more information about CCHS, please visit cchsnetwork.org.
The CCHS Foundation is a subsidiary of the CCHS Family Network. The CCHS Family Network is a non-profit tax-exempt organization registered in the United States. Their mission is to educate and support CCHS families and patients, foster inter-family and family-physician communication, and to support and facilitate CCHS research.
Avery Biomedical Devices, Inc. has been commercially distributing breathing pacemakers since 1971. It is the only diaphragm pacing system to have full premarket approval (PMA) from the US FDA and CE marking privileges under the European Active Implantable Medical Device Directive for adult and pediatric use. In addition to serving patients with CCHS, the Avery device helps people living with quadriplegia and other forms of diaphragm paralysis.