The CCHS Foundation recently hosted our first ever WEBINAR in honor of CCHS Day 2016. The webinar took place on October 17, 2016 at 6PM Pacific Standard Time.
The webinar discussed upcoming initiatives in the CCHS community, including the CCHS Network One World (NOW) Registry in conjunction with the National Organization of Rare Disorders (NORD), and research grants awarded with funds raised during our very first CCHS Day 2015.
We are very excited to team with Global Genes®, one of the leading rare disease patient
advocacy organizations in the world. We hope that this webinar was just the beginning
of our partnership.
In order of appearance: