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CCHS Webinar

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The CCHS Foundation recently hosted our first ever WEBINAR in honor of CCHS Day 2016. The webinar took place on October 17, 2016 at 6PM Pacific Standard Time.

The webinar discussed upcoming initiatives in the CCHS community, including the CCHS Network One World (NOW) Registry in conjunction with the National Organization of Rare Disorders (NORD), and research grants awarded with funds raised during our very first CCHS Day 2015.

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Partners

We are very excited to team with Global Genes®, one of the leading rare disease patient
advocacy organizations in the world. We hope that this webinar was just the beginning
of our partnership.

webinar_global_genes


Speakers

In order of appearance:

  • Rachael Ballard
    Member of the Board of the CCHS Network and Foundation
  • Mary Vanderlaan (PhD)
    Creator of the CCHS Network and the Executive Director of the CCHS Network Board
  • Sarah Yang (PhD)
    Network Board Member and Co-Chair of the NORD Registry Project
  • Edward Yang (M.D., PhD)
    Network Board Member and Research Advisory Board (RAB) Chair